Long Overdue Update!

I have been wanting to get this update out for so long. My dad passed away the day before Thanksgiving and then the holiday season just swallowed us whole with all the boys' activities. Now I am working very hard to finish everything for the conference including - yes - my book which has taken way longer than it should have. I know the information in the book is important, but my boys wont wait - so I've been doing my best fitting it in - but the time has come, it will be available, soon.

I don't even know where to begin with my thoughts on palatal expansion - I guess the best place is with a photo, or 2...
                                                                  

               

Before                                                                                        After

Physically, there is a much bigger space between his front two teeth (and it showcases nicely just how badly he had damaged his teeth before we addressed the grinding!) But the amazing difference to me was the overall shape of his mouth and face. If you look at his back teeth (the ones covered by the expander) look at how far in toward midline they were on the before picture, they were almost pointed inward. Looking at the "before" photo you can see how much space he had on the roof of his mouth - definitely less than the width of his tongue.

The "after" photo shows all of the teeth in alignment and in an outward position. To see Lucas in person you notice immediately when he smiles that it appears that he has a ton of teeth, his cheeks and maxillary area appear different as well.

In the following picture, you can't see the actual palate, but you can see the overall width of his mouth. The silver brace that extends down to the teeth sits off the roof of the mouth - definitely enough room for his tongue now!

I now know for certain the "large tongue" phenomenon is not true, our kids have very small mouths for a normal sized tongue to fit in giving the appearance of an enlarged tongue.

 

    
Aside from the physical, the changes have been dramatic and some of them coming as quickly as two weeks after we had begun expansion.

1. Sleep - Hands down the biggest change we saw within the first two weeks. Lucas slept through the night, breathed only through his nose, and had no episodes of waking. Sleep apnea is one of the biggest areas our kids can have difficulty with and to remedy, our physicians perform surgical procedures to remove tonsils and open sinuses. Sinus infections are a problem, to which many children with T21 are given maintenance antibiotics. In addition, the most exacerbated physical deformity associated with T21 aside from the almond shaped eyes is a diminished middle third of the face.  It stands to reason that enlarging the area and giving the maxillary sinus network proper drainage issues like sleep apnea, noisy breathing, and chronic infection would stop. I can not overemphasize the absolute change in this area.

2. Speech - This one I can honestly say I have no idea if it had anything to do with the expander or not, but it happened simultaneously so I can not rule it out. The first couple of weeks speech remained the same although articulation initially worsened simply due to the appliance in his mouth. After about two weeks we all felt like we were crazy...I'd find myself asking the boys "Was that Lucas?" Singing - keeping time with the song, expressions like "OOOH Mom, I like that!" Asking Questions, answering questions, having a 7-8 turn phone conversation - appropriately. Use of vocabulary (like when he told me his soup was not delicious!), volume of speech, yelling, naming the days of the week upon request, telling me it is "12:15 o'clock" when it indeed was 12:15 O'clock! Despite all of this the BIGGEST change is reading and he'll do it out loud. I know the preferred method of reading is silent, but let's face it, he is going to have to demonstrate the ability to read...and he is.

3. Health - As I had mentioned, the month leading up to Christmas was crazy. In effort to make everything alright, I did nothing "right." The worst failure was Lucas's diet leading up to Christmas. There were several gatherings where food was out and Lucas helped himself to things he probably hasn't ever eaten. Cookies (gluten, dairy, sugar, dyes), crackers, etc. We got all the way to December 23rd and guess who got sick? (Don't anyone ever dare tell me there is no proof that eliminating those things have no bearing on health.) After a miserable Christmas Eve and Christmas Day (goopy nose, sneezing, etc) I held my breath we would not have a respiratory issue. Indeed before we began this path, it would always go from a head cold to his respiratory tract. After two days, something astonishing happened, Lucas got better. He actually for the first time in his life figured out how to blow his nose, and did so. By the day after Christmas, he was ready for action (and of course I was getting sick!) I believe the improved ability for the maxillary sinuses to properly drain directly affected not only the length of illness, but it eliminated the opportunity for the infection to manifest in the respiratory tract.

4. Growth - all of the studies suggest there will be a growth surge within 6 months of expanding. I am being very disciplined about not measuring him everyday! Will let you know how that goes.

I am sure there are a ton of other little things that I am not even thinking of right now, but those were the biggies. Lucas gets his expander off at the end of January and I couldn't be more thrilled with the outcomes.

How I adore this little boy!!!

More Studies to Share with Prospective Physicians

Wow, I shouldn't be amazed at how a small thought snowballs into ideas and how the internet brings reality to your door in minutes!

A wonderful mom I have met through my blog shared these studies with me from Portugal. If you look through, many are in English and all are pdf. It seems "Rapid Maxillary Expansion" in children with Down Syndrome has been statistically proven to improve sleep, speech, eliminate sinus infections, ear infections, etc.

Many of these studies were published in journals of otolaryngology...how amazing this simple process of a maxillary expander might hold the key to the most common issues our children have without surgery.

I know I just posted the 15 day picture..I can't do it again until 30 days, but the changes are daily, noticeable and very, very good!

Thank You Ana for the information!!

http://www.paediatric-dentistry.com/odp-publicacoes.php

Link to Dr. Weston Price's Study

I thought I had shared the link with you before, but so many people have asked me for it perhaps not. Here is the Link to Dr. Weston Price's study. Incredible read from beginning, but you need to scroll down to find the study of the young man with T21.

http://www.westonaprice.org/dentistry/from-attention-deficit-to-sleep-apnea


Here's the incredible part - at age 16 several inches in linear growth after expansion and many measurable IQ points. The visual however, is downright startling.

Expanded Update!

Just wanted to update everyone on Lucas's adventure into orthodontia.

As I had written, I found a "holistic" orthodontist of sorts to hear me out on the whole palate expander issue. The more I researched the implications of a small mouth on the pituitary gland function the more convinced I was that It held the key for many of our kids who typically have small mouths. Add to that the sleep apnea which - even children who have surgeries still seem to have have - I was on a mission.

Fifteen days ago Lucas got his expander. He was so good about making the mold for it - the Dr. let me do it - no fuss, I put that huge tray full of goop in his mouth to make a mold - and it was perfect. The expander is cemented to his teeth so there is only the thin bars across the top which is great because it hasn't really affected his speech - which is exploding!

Anyway, big man lays right down on my lap, lets me put the key in his mouth and turn it - every night, he's amazing. He is also extremely good about brushing and water-piking. As I said, we are 15 days into it, we halfway finished, we turn a total of 30 times.

Let me first say, the change in facial appearance is stunning. Only half way into it, his nose looks bigger, his cheeks look more developed and that "smallness" seems to be vanishing. Aside from that there are AMAZING changes in sleep. Only nose breathes, does not wake up in the middle of the night, sleeps straight through until 6:30 / 7:00am. Truly, truly, incredibly different. I do believe the extra width through the maxillary structures are allowing for better sleep. His speech is also incredible, answering questions, asking them, and reading...everything...out loud, amazing.

We just had pictures taken two days ago (I wanted a nice set before the full set of turns gives him jack-o-lantern teeth!), I can't stop looking at them, this one in particular is incredible (beautiful of course, but noticeably different structure -wise.)

Can't wait for the next 15 days. Changes are incredible!